1. Dennis, Jill Callahan, Privacy and confidentiality of health information, Jossey-Bass Health Series/AHA Press, San Francisco, 2000, p9.
2.1 Bodemer, Charles W., “Hippocratic oath.” Grolier Multimedia Encyclopedia. Grolier, Inc., 2003. <http://go.grolier.com/gol> (April 22, 2003).
2.2 Chapman, Audrey R. ed., Health care and information ethics: Protecting fundamental human rights, Sheed and Ward, Kansas City, Mo., 1997, p243-245.
For more details on the Hippocratic Oath look up this article at the UNC-CH Health Sciences Library: Dorman, John in Journal of American College Health, 09/01/1995.
3. National Research Council, (Committee on Maintaining Privacy and Security
in Health Care Applications of the National Information Infrastructure; Computer
Science and Telecommunications Board; Commission on Physical Sciences, Mathematics,
and Applications), For the record: Protecting electronic health information,
National Academy Press, Washington, D.C., 1997, p75-6.
4. Davis, Michael W., Computerizing healthcare information, McGraw-Hill, New York, 1998, p151.
5. Smith, H. Jeff, Managing privacy: Information technology and corporate America, The University of North Carolina Press, Chapel Hill, 1994, p5.
6. Davis, p145.
7. Davis, p147.
8. Smith, p199-200.
9. Smith, p195-196.
10. National Research Council, figure cited came from a p2 reference to Munro, Neil, “Infotech reshapes health care marketplace,” Washington Technology, Aug 8, 1996, p1.
11. Kluge, Eike-Henner W., The ethics of electronic patient records, Peter Lang Publishing, New York, 2001, p40.
12. Ware, Willis H., “Privacy dimensions of medical record keeping,” presented at “Health records: Social needs and personal privacy,” conference jointly sponsored by the Task Force on Privacy, Office of the Assistant Secretary for Planning and Evaluation and the Agency for Health Care Policy and Research, Department of Health and Human Services; Washington, D.C., February 11, 1993. Paper published by RAND, Santa Monica, Calif., 1994, p5.
13. Skurka, Margaret A., Health information management: Principles and organization for health record services, American Hospital Publishing Inc., Chicago, 1998, p17.
14. Davis, np (CPR, computerized patient record added to the acronyms glossary).
15. Dennis, p3. Fig. 1.1 provides MIB contact information for U.S. and Canada.
Other books skimmed for reference
Brown, S. Scott, College health information systems on the Internet: Trends
and future potential, paper for master’s degree in public health,
University of North Carolina at Chapel Hill, 1995, system security discussion
starts on p46.
Davis, p165-79 for basics on security and data repositories.
Dennis, p11 on basics of electronic signature standards; p21 on information
disclosure.
Dockendorf, Dionne M., Web page support for use of slang terms during Internet
searching in sexual and reproductive health, paper for master’s degree
in information science, University of North Carolina at Chapel Hill, 2002.
Fessler, Sally K., Patient education and consumer health information on
psychiatric disorders and treatment: Resources and roles for the mental health
librarian, 1997 paper for master’s degree in library science, University
of North Carolina at Chapel Hill.
The regulation of privacy and data protection in the use of electronic health
information: An international perspective and reference source on regulatory
and legal issues related to person-identifiable health databases, Pan American
Health Organization, Washington, D.C., 2001. Data-related definitions begin
on p7; privacy history p24-27; EU recommendations p95; explains why U.S. privacy
is not an explicit right p133.
Skurka, on preservation of medical records, p157.
Ware, on Home Office Reference Laboratory (HORL) processing blood samples without consent forms; computer system without access controls; data entry clerks looking up records of celebrities and athletes and photocopying those that seemed of souvenir value, p7-8.
Additional Web resources
(accessed variable dates between January and April 2003)
National Archives and Records Administration, Privacy Act Issuances, 1999 compilation
Online via GPO access: http://www.access.gpo.gov/su_docs/aces/1999_pa.html
North Carolina Healthcare Information and Communications Alliance (NCHICA),
“HIPAA Readiness: Solutions and strategies from and for academic medical
centers,” April 7-9, 2003, Research Triangle Park, N.C. http://www.nchica.org/HIPAAResources/Links/AMC/default.asp
Government Information Value Exchange for States (GIVES), of which NCHICA is
a member, provides organization and vendor contact information such as who is
the HIPAA officer at a particular location: http://www.hipaagives.org/member.asp
HIPAA security guidelines from the Association of Academic Medical Centers:
http://www.aamc.org/members/gir/gasp/securitysectionone.pdf
National Committee on Vital and Health Statistics (part of DHHS) will link
to some of the privacy legislation affecting collection of statistics http://ncvhs.hhs.gov/index.htm
Summary of the HIPAA rule from the Office of Civil Rights http://www.hhs.gov/ocr/privacysummary.pdf
Standards for privacy of individually identifiable health information, December 28, 2000. http://www.hhs.gov/ocr/combinedregtext.pdf