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The
Mary Junck Research Colloquium Series Fall 2008 |
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School of Journalism
and Mass Communication |
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Dr. Barbara Wildemuth
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Professor |
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Oct. 2
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What Patients Want from Their Personal Health Records
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Personal health records (PHRs) have the potential to empower people in managing their long term healthiness and in communicating effectively with their health care providers. Currently we have only anecdotal data concerning how and why someone might use a personal health record. Therefore, an exploratory study was conducted to identify the potential uses of and patients’ concerns related to acceptance of PHRs. Forty-three semi-structured interviews explored frustrations with existing PHR’s, the range of uses for which people would create and maintain PHRs, the types of data they would keep, and the privacy and security issues that are most important. Study participants were purposively recruited from four specific groups that are likely to be early adopters of PHRs: parents with young children, adults with chronic illnesses, adults caring for older parents, and older adults. Most of the participants currently keep health records of some kind, but have little confidence in their ability to find and use particular records when needed, and described their difficulties in sharing records between health providers. These, and other results from the study will be presented and discussed. |
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If you would like additional details or information Sriram "Sri" Kalyanaraman |
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